Receiving a dementia diagnosis is life-altering, not just for the individual but also for their loved ones. The decision to inform the person diagnosed with dementia brings about a moral and ethical dilemma: should you tell them or not?
Deciding when to inform someone about their dementia diagnosis depends on several factors, including the stage of the disease, the person's ability to comprehend and cope with the information, and the support system they have in place to help them manage the diagnosis.
One of the main reasons to disclose the diagnosis is to allow the person to actively participate in planning their future care, legal, and financial matters. It can also help them understand their limitations and the need for assistance with daily activities. This is particularly relevant in early-stage dementia when individuals still have a good level of cognitive function and can grasp the diagnosis.
If you choose to tell them (which might be the right decision in the early stages), be aware that revealing a dementia diagnosis can cause significant emotional distress. Make sure to seek help from a mental health professional to guide you and your loved one in processing this information. Additionally, having a strong support system in place can make a significant difference in helping them cope with the diagnosis.
In the later stages of dementia, discussing the diagnosis might cause unnecessary distress without any practical benefit. In these cases, it might be more compassionate to focus on comfort and support rather than detailed information about their condition.
Balancing the right to know with the potential for emotional harm requires careful consideration. The goal is to ensure the well-being and dignity of the person diagnosed with dementia, whatever the decision may be.
I wish you strength and wisdom as you navigate these challenging decisions. Remember, you're not alone in this journey, and there are many resources and people who can offer support.
Best,
Meira- OT and founder of Assistex brand
